Email to Senator Cory Gardner

This picture from his website

Re: S.497 – Lymphedema Treatment Act

Dear Senator Gardner, I have recently been diagnosed with lymphedema caused by damage from my cancer treatments. The supplies I need every month to keep my condition under control are not an option. Without those supplies my condition will progress and become worse. With the supplies I can keep my condition under control. My insurance covers none of the cost of of these supplies. This makes no sense! People with conditions such as high blood pressure or diabetes get help from their insurance with the things they need to keep their condition under control. I’ve paid my insurance premiums for over 40 years now and until I got my cancer and now this lymphedema I barely used my insurance. Now that I need it, it’s not there…. How disappointing. Please reconsider your position on this important issue and review this proposed Act again with my comments in mind. I still work full-time, and have been able to adjust my budget to pay for my necessary supplies to keep my lymphedema under control. I just wonder about people who are on such a tight budget they let their lymphedema get out of control, what happens to them. Or the young family whose child gets diagnosed with a form of lymphedema and they have to find a way to pay for that child’s supplies. I hope you are able to read my email personally and not one of your staff. I would love to hear from you if you have any information that you would like to share with me. Thank you for your time today, Paula Matsumoto.

Do I sound annoyed?   Colorado’s Senator Michael Bennet and Representative Diana DeGette are cosponsoring this Act and are on board.

Got an automatic email response.  Hope to get a real one some day.

A Message From the World’s Astronauts

Compelling message from our around the World Astronauts warning the 2016 Climate Change Conference of a vanishing planet.

Includes a moving message from Netherlands’ Astronaut Wubbo Ockels, Ph.D where he describes his love of the Earth and stating his beloved Earth has cancer.  He recorded his statement the day before he died from cancer.

Offering hope if we all work together we can save our planet.

 

Lymphedema Treatment Act

Imagine you are told you have a condition that requires lifetime treatment.  The supplies you need are simple, some are expensive, but necessary to control your condition.  And then you find out your treatment supplies are consumed very quickly and must be replaced constantly.  And none of those supplies are covered by insurance.  And finally you realize if you don’t pay for all these supplies your condition will deteriorate and get worse.

There are many causes of lymphedema.  It touches people of all ages.

http://lymphedematreatmentact.org/

 

Lymphedema is Forever

 

You can’t cheat lymphedema.  It can affect a famous actress, different cancer survivors, the soldier who suffered a terrible trauma, a child with a genetic or inherited issue.  It’s with you forever. Don’t follow your treatment? Serious complications will follow.

I will need to wrap my arm like this every night for the rest of my life.

Some of the supplies I need every day, these are a just a portion and these  along with the rest are not covered by my insurance, there are much more not pictured here.  I spoke with my physical therapist about why some people let their lymphedema get out of control. Came to light that perhaps they could not afford all of the supplies.  Homeless?  Have to choose between your lymphedema supplies and paying your rent or mortgage or groceries?   The truth is my insurance pays for none of the supplies I need to keep my lymphedema under control!  They pay for a portion of one sleeve and glove each year that is my daytime therapy (I’ll need at least 2 or 3 each year minimum if I am really careful).  I am not alone, another lymphedema sufferer I know is in the same boat as I am. We both have jobs so we are not going to sink but that boat next to us is sinking.

I am getting my lymphedema under control and was just measured for my first sleeve and glove that I’ll wear during the day.   My insurance is not covering all of this and the supplier called me to make sure I knew my out-of-pocket was quite hefty and not part of my deductible and I was responsible for this uninsured portion.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Rebel Rodriguez, Arvada, Colorado’s Woman of the Year, and Little free food bank!

Rebel Rodriguez is the 2017 Arvada Chamber Woman of the Year.

Here in Arvada, Colorado our woman of the year, Rebel Rodriguez runs an amazing food bank serving disadvantaged residents and Arvada’s homeless.  She also stocks an equally amazing little free food bank on the corner of Grandview and Olde Wadsworth at the Rising Church.  The Blessing Box.

Inspiring me to make snack and lunch bags for our children and homeless.

Thank you Rebel for your community service, to read more about Rebel go here to Rebel’s article.