Lymphedema Treatment Act

Imagine you are told you have a condition that requires lifetime treatment.  The supplies you need are simple, some are expensive, but necessary to control your condition.  And then you find out your treatment supplies are consumed very quickly and must be replaced constantly.  And none of those supplies are covered by insurance.  And finally you realize if you don’t pay for all these supplies your condition will deteriorate and get worse.

There are many causes of lymphedema.  It touches people of all ages.

http://lymphedematreatmentact.org/

 

Lymphedema is Forever

 

You can’t cheat lymphedema.  It can affect a famous actress, different cancer survivors, the soldier who suffered a terrible trauma, a child with a genetic or inherited issue.  It’s with you forever. Don’t follow your treatment? Serious complications will follow.

I will need to wrap my arm like this every night for the rest of my life.

Some of the supplies I need every day, these are a just a portion and these  along with the rest are not covered by my insurance, there are much more not pictured here.  I spoke with my physical therapist about why some people let their lymphedema get out of control. Came to light that perhaps they could not afford all of the supplies.  Homeless?  Have to choose between your lymphedema supplies and paying your rent or mortgage or groceries?   The truth is my insurance pays for none of the supplies I need to keep my lymphedema under control!  They pay for a portion of one sleeve and glove each year that is my daytime therapy (I’ll need at least 2 or 3 each year minimum if I am really careful).  I am not alone, another lymphedema sufferer I know is in the same boat as I am. We both have jobs so we are not going to sink but that boat next to us is sinking.

I am getting my lymphedema under control and was just measured for my first sleeve and glove that I’ll wear during the day.   My insurance is not covering all of this and the supplier called me to make sure I knew my out-of-pocket was quite hefty and not part of my deductible and I was responsible for this uninsured portion.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Rebel Rodriguez, Arvada, Colorado’s Woman of the Year, and Little free food bank!

Rebel Rodriguez is the 2017 Arvada Chamber Woman of the Year.

Here in Arvada, Colorado our woman of the year, Rebel Rodriguez runs an amazing food bank serving disadvantaged residents and Arvada’s homeless.  She also stocks an equally amazing little free food bank on the corner of Grandview and Olde Wadsworth at the Rising Church.  The Blessing Box.

Inspiring me to make snack and lunch bags for our children and homeless.

Thank you Rebel for your community service, to read more about Rebel go here to Rebel’s article.

Thrift Store Rescue!

A small food bank run by a local church near me has an even smaller free library for the families and homeless people it serves.

No children’s books!?!  Gotta fix that!  Children need books to nourish their minds   For less than $15.00 these books will fill the lower shelf of the small library for those kids!

 

The Year of the Fire Monkey or Red Monkey 1956 and 2016, Henry and Mom

 

Henry 3 months
Henry 3 months

Henry here with a guest blog post on something I share with Mom.

The year of the Fire Monkey occurs every 60 years, the last time was in 1956, the year Mom was born.  The year 2016, the year I was born, is a Fire Monkey year running from February 8, 2016 to January 27, 2017.  Not sure of my exact birthday as I am a rescue but it is the end of October so Mom and I decided we can share the same birthday, October 29th!

The year of the Monkey occurs every 12 years.  Other types of Monkey years are Metal, Water, Wood and Earth.

Other famous Fire Monkey babies born in 2016 and 2017?

  • Deveraux Octavian Basil Jagger born December 8th to Mick Jagger.  The eighth child of the 73 year old Sir Mick Jagger.  Long live rock-n-roll!
  • River Rocket Oliver son of Chef Jamie Oliver born on August 8th.  River’s siblings?  Poppy Honey Rose, 14, Daisy Boo Pamela, 12, Petal Blossom Rainbow, 6, and Buddy Bear Maurice, 5.
  • Sawyer Mathew Shay born December 31st, 10 minutes to midnight, making him one of the last babies to be born in 2016.  And his twin Everett Jackson Shay born just after midnight on January 1st, making him one of the first new year’s babies of 2017.
  • Hugo Wilson Dallas son of Prince Charming and Snow White (Ginnifer Goodwin and Josh Dallas) born on June 1st.  As you may recall from an earlier post, my Mom picked out my name Henry before she found me.  She was reading a book called The Corner of Bitter and Sweet and the main character was Henry who she loved.  At the same time she was watching Once Upon a Time on Netflix.  Henry was the son of the Savior and the grandchild of Prince Charming and Snow White.  She watched Henry grow from a boy to a brave and smart young man.  I plan to grow from a small rescue puppy into a brave and smart dog.

Monkeys are known as:  Ambitious, adventurous, clever and lucky.  The outgoing nature of the Monkey makes them great performers.  Monkeys have quick confident responses to anything they face.  This coupled with their intelligence make them helpful allies in solving problems.

The Fire Monkey is the most passionate and energetic of the Monkeys.  Fire Monkeys tend to be adventurous and risk-takers (this explains why I already stand and balance on my brother’s feeding dishes at mealtimes).

Fire Monkeys love to be the center of attention and I keep Roscoe, Monty and Mom hopping!