Re: S.497 – Lymphedema Treatment Act
Dear Senator Gardner, I have recently been diagnosed with lymphedema caused by damage from my cancer treatments. The supplies I need every month to keep my condition under control are not an option. Without those supplies my condition will progress and become worse. With the supplies I can keep my condition under control. My insurance covers none of the cost of of these supplies. This makes no sense! People with conditions such as high blood pressure or diabetes get help from their insurance with the things they need to keep their condition under control. I’ve paid my insurance premiums for over 40 years now and until I got my cancer and now this lymphedema I barely used my insurance. Now that I need it, it’s not there…. How disappointing. Please reconsider your position on this important issue and review this proposed Act again with my comments in mind. I still work full-time, and have been able to adjust my budget to pay for my necessary supplies to keep my lymphedema under control. I just wonder about people who are on such a tight budget they let their lymphedema get out of control, what happens to them. Or the young family whose child gets diagnosed with a form of lymphedema and they have to find a way to pay for that child’s supplies. I hope you are able to read my email personally and not one of your staff. I would love to hear from you if you have any information that you would like to share with me. Thank you for your time today, Paula Matsumoto.
Do I sound annoyed? Colorado’s Senator Michael Bennet and Representative Diana DeGette are cosponsoring this Act and are on board.
Got an automatic email response. Hope to get a real one some day.
Imagine you are told you have a condition that requires lifetime treatment. The supplies you need are simple, some are expensive, but necessary to control your condition. And then you find out your treatment supplies are consumed very quickly and must be replaced constantly. And none of those supplies are covered by insurance. And finally you realize if you don’t pay for all these supplies your condition will deteriorate and get worse.
There are many causes of lymphedema. It touches people of all ages.